Wednesday, December 26, 2012

The day after Christmas and all was quiet! My little angel had a spinal tap that was clear -yeah! Her lung xray was also clear-Yeah! but she still had a fever and a high WBC- Boo! In spite of that she was a smiley girl and had a relatively good day. She is definitely frustrating the docs for sure! We don't know when her transfer will be or what the next course of action will be. We know that she is doing better overall and they will figure out what is going on. Carrie is staying with Amanda at my niece Laura's Art's house tonight as Amanda was having trouble not having Mommy with her. Glen is with Julia and we hope he is able to get some sleep as Carrie is returning to Santa Rosa tomorrow night to have an appointment with social security on Friday morning. We hope that goes well. The rest of the plans just change from day to day as the day progresses. We are just thankful for all the forward motion we have made and know that it will continue when we get around this bump!

I know that you are working on the swallowing and that is huge! The poop continues to go well and the smiling is fabulous. We see little glimmers of other things that are fleeting but when they are around more we will be shouting from the rooftops! 

I hope you all had a restful day and unlike my friend Joyce didn't have any flu flare ups as that is the pits. Stay well and we love all of you.

Take care and know you are blessed!
Grammie Jen

1 comment:

  1. Praying for the fever to go away. Those little viruses out there surely make Julia work hard. I wish they give her a well deserved long break soon. Love to you all.