Well my patient sweet angels, you have been awaiting the news from the meeting etc. My sweet pea will be moving to Oakland Children's Hospital after Christmas. She will be there in their ICU for a day to train people on the use of the ventilator and her trach. Then she will go to the floor for her rehab. She will stay there as long as she is making progress and doesn't plateau! I am of course sure that she will excel mightily and not have to stay too long as she will be doing so well and not being static.
It sounds like a long process but I know with all the love and help of
her band of angels we will make short work of it, in a manner of
She had her windpipe looked at today and found that her
vocal chords vibrate which means no paralysis of them! Yeah girl! We
are hoping that with that and swallowing prayers she will be able to
function much better! We were very excited with that report!
said that she had a great day and they are trying to take her off the
blood pressure medication and see how she does. She sat up in her
special chair for around 3 hours which is fabulous. I think she is
getting ready to see Santa when he visits the hospital tomorrow morning.
We are hoping he will be able to see her and we can get a picture with
him! We took Amanda to see him today and it was very lovely. She
asked if he was going to see Julia tomorrow and we aren't quite sure
what his reply was! It was hard to not have Julia with us when we went,
but Amanda had been talking about it for days. We had hoped that Santa
would visit Julia on a day when Amanda could be there too, but just
didn't work out:(
Carrie came in at a late hour last night and we
didn't get to talk until later this morning and this is my first chance
to post so thanks for being so patient!
Carrie and Amanda have
Amanda's Christmas program tomorrow evening and we are hoping that Glen
will be able to be there in time. They will then go back to Oakland and
all staying thru Christmas. We are so lucky that Francesca's brother
has offered his house for Christmas eve and Christmas for our family!
My neice Laura's Art is going to be out of town until the 5th of January
so that is another home in Oakland that is being opened to them. We
are so very blessed!
The doctors are very optomistic about Julia and
they say that there is no doubt that she is understanding what is being
said and is very aware. She has been working very hard on all the
therapy that they give her and is really trying to control her legs and
arms. That is a lot of tiring hard work.
I am planning on going
over tomorrow morning to kiss, cuddle,sing and read! Hopefully I won't
drive everyone nuts! Glen's dad and Carole are coming in the afternoon
and I will be going to see my amazing mom. We will all be in Oakland
for Christmas eve and Christmas with the Sorensen side of the family.
We only wish that Dennis and his crew could join us, but since we are
infringing on the kindness of others Our group will be large enough!!!
Will give an update after massive kissing and such tomorrow.
Once again I will tell you all that you are so very special and an
important part of this recovery process. We love you all and send
blessings to you all.