Chronicling Julia's journey back to health after being diagnosed with a brain tumor in late October, 2012.
Thursday, December 13, 2012
dear you are amazing and oh so special! My girl had a good day! She
was very unhappy when they came to work with her for pt and the
therapist said that she thought Julia needed to be held by her mommy.
Julia smiled very big and was very happy to be held! I think she is
trying to make up for lost time! She stayed cuddled with Mommy until Daddy took over cuddle duty which also made her very happy! Daddy has
been working on having her make movements that mean yes and no so she
has more control over what is happening.
They have put her back on
the ventilator and have it set so she gets a breath ever 12 seconds.
They say that having her oxygen drop as much as it was was not letting
her brain heal. So it is going to be a little bit slower process. Once
she starts swallowing and breathing all the time she will make even
more leaps and bounds! I know you all will help to get those two things
under control! Overall is is truly amazing and making great progress. We and the docs are very impressed with her even with the few wrinkles!
Amanda, Mommy and I went to the library and Amanda Oliver and Finn made
gingerbread houses! It was great! We then had a wonderful dinner
provided by one of Carrie's angel friends! How special - we capped the
evening off with advent candle lighting and story read!
A truly lovely time! A wish for healing sleep to all! Love hugs and blessings Grammie Jen