Thursday, November 15, 2012

Grammie Jen's Update

My dear Julia's angels! I am sorry that I haven't updated you all yet today! My amazing sweet pea is truly amazing! She had a big MRI this morning and from the nurse practitioner we heard the tumor was nailed and there is only some microscopic traces left! Awesome! She is off the ventilator for a try this evening and her external shunt is turned way down as her csf is going where it belongs in the spinal cord! Praise! Wow she is so trying hard. Carrie and Glen meet with the surgery team tomorrow am and I'll give you an update tomorrow. She is moving toes and hands and eyes, we are hoping she gets some good healing sleep and tonight's transfusion and feeding to get some more strength to wake up and push aside that twilight curtain!
Once again I have to send my love and blessings to each of you and your networks! You are guiding the staff and supporting us all!
Sleep tight one and all we love you!
Love and hugs,
Grammie Jen


  1. We are thrilled to hear the good news. Keep up the good work. We cannot wait to see her and, hopefully by the time we are back, see her smile. vince and heather

  2. Tony, the boys and I are reading this everyday and keeping you all in our prayers every night at bedtime. So happy she is doing so well!

  3. So happy to read about the successful surgery. Thinking about little Julia often and praying for continued strength for her and her loved ones.
    Love, Carol (Evan's mom from Tiny Tots)