Chronicling Julia's journey back to health after being diagnosed with a brain tumor in late October, 2012.
Tuesday, January 15, 2013
sweet pea is hanging in there trying oh so hard to get stronger and
better. We were excited that they were going to take her outside, but
outside meant outside her room. That is pretty darn good too and we
will take it!!!! They are also trying to get it so that she can sit in
the doorway of her room and feel a part of the goings on on the floor. I
guess the nurses sit across the way and many kids walk down the halls.
I guess that would let them keep an eye on her and let her feel like
she is part of the world at large!!! You go my little Julia!!!
Tomorrow morning is the big meeting and we hope that some questions and
such will be answered by the team. I talked to Carrie for quite a while
today and she has a great deal of faith in the team and knows that it
will work out. They are bringing out a hematologist to take a look at
her blood count having trouble going up. I am glad but hope that it is
just that they are just taking too much blood from her. They seem to be
still waiting to get permission from Kaiser to do the bronchosopy.
Hopefully they will get some answers. They are doing her breathing
shaking [this is a vibrating vest they put on her to help keep her lungs clear] at 2 am and they wake her up several times a night when they
suction her. I hope that the concerns about disrupting her sleep will
be addressed and not just put as a hospital policy which seems to be the
answer they get right now. Carrie and Glen have one last night
tonight at the Family House and Carrie was happy to learn that from 10 -
6 she can use their showers and kitchen and such. That is a big
relief. They are also hopeful that they can get back in in about a
week. I sure hope so! I hope to be able to tell you about her big
"outing" from the room tomorrow! I am sure that she will be thrilled no
matter how big or small it may be! You all are keeping us sane and okay! Thank you so much for all you do for us.
Another little side note, my" baby" brother is having some heart
problems and could use a few prayers! Thanks, angels! I love you! Love and hugs I look forward to giving a great report tomorrow! Love Grammie Jen