Chronicling Julia's journey back to health after being diagnosed with a brain tumor in late October, 2012.
Friday, January 11, 2013
dear ones, Julia is trying so hard to do her best! She works hard at
her therapies, but has a bit of a hampering as she is having so much
trouble with her desating. She is being quite a mystery to the docs.
She goes from 100% Oxygen to turning blue and passing out in less than
30secs. It is happening much too often and is extremely scary and oh so
exhausting for my little one. I think we need to work on them finding
out and fixing what is going on with my girl! The doc told them
that he thinks that maybe she is seeing some things and sometimes she
doesn't. It may be that she can decipher that which is the most
familiar. So Carrie and Amanda are packing up her most favorite things
to bring to show her and see what happens. They are planning to go on
Friday night. We are hoping Julia will be off restriction and Amanda
can see her. Amanda is having a much harder time now than before. I think that she is really fried at all that has been happening. Hopefully it will bet better soon. I know my angel will get there!
Overall my girl is definitely progressing, just these pesky roadblocks
that need to be circumvented! I am anxious to hear how the speech
therapy is going as that will be very interesting. They are going to be
having a family meeting on Wednesday and that will give them hopefully
some answers and such. I wish I could go, but the doc said that I need
to stay away until my bronchitis is totally gone! My flu is on the wane
and I just need to get the chest to be better. Makes me feel like a
welsher when my little one is going through so much harder stuff!!!
So our job is to figure out what is going on with her desating and how
to remedy it. I am sure that we can do it. You are the best! Thanks
for taking on this new assignment. I can't wait to report our conquest
of it! Love you all Grammie Jen