The
day after Christmas and all was quiet! My little angel had a spinal
tap that was clear -yeah! Her lung xray was also clear-Yeah! but she
still had a fever and a high WBC- Boo! In spite of that she was a
smiley girl and had a relatively good day. She is definitely
frustrating the docs for sure! We don't know when her transfer will be
or what the next course of action will be. We know that she is doing
better overall and they will figure out what is going on. Carrie is
staying with Amanda at my niece Laura's Art's house tonight as Amanda was
having trouble not having Mommy with her. Glen is with Julia and we
hope he is able to get some sleep as Carrie is returning to Santa Rosa
tomorrow night to have an appointment with social security on Friday
morning. We hope that goes well. The rest of the plans just change
from day to day as the day progresses. We are just thankful for all the
forward motion we have made and know that it will continue when we get
around this bump!
I know that you are working on the swallowing and
that is huge! The poop continues to go well and the smiling is
fabulous. We see little glimmers of other things that are fleeting but
when they are around more we will be shouting from the rooftops!
I
hope you all had a restful day and unlike my friend Joyce didn't have
any flu flare ups as that is the pits. Stay well and we love all of
you.
Take care and know you are blessed!
Love
Grammie Jen
Praying for the fever to go away. Those little viruses out there surely make Julia work hard. I wish they give her a well deserved long break soon. Love to you all.
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