Grammie Report: Big Smiles

Oh what joy was on my sweet pea's face as she took a stroller walk in the hall today!!! It was such excitement- her face was all smiles and it was so big most times you could see her teeth!!! I will try to post a picture but I can only catch our Mona Lisa smiles - that girl has been tricky with me for two years! OT and PT set her up in a special stroller and took her to a special play room on the floor to work! She was so happy and did such a good job sitting upright! She actually was off oxygen the whole day and did well! She got pretty tired by the second stroller walk and started falling asleep during therapy. She is still in need of a bit of an afternoon snooze like her Grammie!!! I got to sing and do lots of kisses and I left her in the wonderful arms of her Nona! Grandpa Don is staying with her tonight and that enabled me to drive Carrie home to have a night with Glen and Amanda! They will get their Christmas tree tomorrow and do the decorating! Julia will be in the loving arms of Nona and Grandpa Don! Carrie and Glen and Amanda will join them in the afternoon and tell her all about what they did! She loves to hear happy things and hear how they look! She brought her eyes to midline which was so exciting- we know that she'll be seeing things soon!

 

You all have done a great job on poop and other things -we now need to work on swallowing. I am sure she'll get it, just needs her band of angels to help her!!!

She got more hearts and angels in the mail! What a loved sweet pea! You are so amazing! You have held us so close to your hearts and prayers that we are truly uplifted!
I hope you had a bit of our joy in your day too!
Love you all
Grammie Jen

 

Grandmas on duty

Sweet photos of Nona telling Julia stories and Grammie getting her toes!

Quick update

Carrie reports: Julia has been weaned of oxygen during day. We went on our first stroller walk around the halls today and she was all smiles.

Grammie Update

My dear sweet angels, I am sorry that this is so late but I couldn't leave my sweet pea as all I wanted to do was keep holding and kissing her!!! Her bed has so many angels and hearts on it that you know this little one is always in the hearts and prayers of so many!!!!! We are so blessed to have you all in our lives!!!!
 
Today was wonderful for me as I held my dear one close to my heart!!! My Carrie was very generous with me! I sang kissed and kissed some more! She actually slept some lovely sleep for a couple of hours in my arms! I had to let her go to change her poop, yea poop, filled diaper. She smiled so much her little face probably was tired!!! Not from the poop but it could have been!!!

We were very lucky to have Aunt Nancy and Uncle Tom come visit and also cousin Laura! It was grand! It is always a treat to see them!

Our girl seems to rest a bit better here as there aren't as many alarms which is wonderful! There is a definite learning curve for both us and the nursing staff. I think it will get better with each day!!! I am so proud of both my sweet pea and her mommy- they are terrific!
I am anxious for a bit more kissing and singing tomorrow! Looking forward to a better and stronger day tomorrow!
 

Thank you for all your love and support - it means the world to us!
May you all have a wonderful day tomorrow!
With much love
Grammie Jen

Love

Grammie finally got to hold her sweet pea today!

New Digs

A big day for the King family! Grammie reports: 
My sweet peanut got moved and settled in her new digs! Carrie says she is relaxed and is doing well. There as always a new set of challenges to work on. They are in a nice big room with windows but unfortunately the room is very oddly divided. Julia has 1/3 of the room by the door and can't see the window and Carrie is trying to figure out how to make the one chair work as her bed. As of our last chat it is only able to fit under the sink used by the staff. The staff keeps apologizing for the situation but Julia must be close to the nursing station as she is the most serious patient on the floor. We think overall it will probably work out and Julia will make great strides. She started smiling as soon as she heard her mommy's voice this morning. A wonderful thing! I hope she will be as happy to see me as I will be to see her tomorrow!

Hope you all had a wonderful day and are having a snug lovely evening tonight.
We love you
Grammie Jen

A later night update from speaking to Carrie: Julia has been sleeping very peacefully since she has been in her new room. The overall environment is so much calmer and quieter, and should be more conducive to healing.  Julia will need her rest, because she will be working hard with all of the therapy scheduled for her. They met many people on her team today, and she gets started with therapy tomorrow. She will have Physical, Occupational and Speech therapies, and it sounds like she will often have both morning and afternoon sessions of each. It will be intense, and very exciting as she continues to make progress!
Wishing everyone a wonderful night,
Francesca 

On the move

Amazing new news! My little sweet pea is going over to Oakland Children's Hospital tomorrow morning to begin rehab! Glen went over today and saw the room etc. he is excited for her and impressed. She will be in a room with one roommate and it has windows! Yeah! They do lots of play therapy and Carrie and Glen will be taking over some of her care - she will probably get to wear some clothes though she still has the broviac in her femoral and right now it has a bunch hooked up to it. We aren't sure how the feeds will go as it has been a very slow intake but I am sure they are set up and ready for her.

Carrie will go over to Kaiser right after she gets Amanda off to school. Friends will pick up Amanda from school and watch her until Glen can get there in the afternoon. I am sure they both want to help get Julia settled! Please send Glen good healing thoughts as he is not feeling so good this evening. I think the lack of proper sleep is catching up with him as it did with Carrie! Hopefully they will be able to get more rest in the new facility. They unfortunately don't qualify for the Ronald Macdonald type house as they live just under 70 miles away. I am sure it will all work out as my girl gets stronger and better each and every day!

Your prayers and thoughts are so keeping us strong - thank you all for your continued coverage of us - it is so very appreciated and makes us so blessed!
 

Thank you and love to one and all!

Love
Grammie Jen