A good day

My little angel had a pretty darn good day! Mommy held her this morning and daddy had her this afternoon. One of the relief nurses held her when she was alone while Carrie and Glen were driving to switch places! We were all very happy that he saw her and picked her up since mommy and daddy were not able to be there! Her blood pressure was too high this morning and then too low this afternoon. They are still working on it! I talked to her via speaker phone both this am and pm. I was told she smiled and wiggled her toes - that made me very happy!!!

Amanda was having trouble sleeping without mommy around so since she was exhausted Carrie went home. I hope she will stay for two days and try to get some rest.

My angel is waiting to be held and sung to by Grammie - I just know it! They practiced her holding her head and she did it for several seconds! Yeah my girl! She also has a special seat for her to practice sitting up in and she did

great! I am very proud of her. She also has two poops and they are going to increase the "food" intake volume. That girl is getting stronger!

I hope you all enjoyed this lovely day!

I know that after a healing and peaceful sleep for all my babes will have a terrific day tomorrow!
I love each of you and hope a prayer will also be sent for aunt Bills surgery on his wrist tomorrow! We need him better so Julia won't miss him any more!
 

Love you all!!!
Grammie Jen

Hanging out at one of Julia's favorite places, the creek near her home.

Grammie's Update

My dear ones, my girl had a pretty good day. They had to work on keeping her blood pressure down and her ng tube got pulled out and had to be replaced. I just want to grab my little sweet pea and hold her close and safe - oh if it was only so easy!

Carrie and Glen both held her a lot and Carrie spent over an hour reading to both Julia and Amanda. Glen took Amanda home tonight and Carrie is staying in the PICU. I am not sure when they will switch next but they are going to try it without me for a few days. I will go back on Thursday and then visit my mom before I go see Amanda and then onward to home. Thank you all for my many birthday wishes - it was a great day! Kev and Kelly and Peter made dinner and we got the Christmas tree up and decorated! It is ever so beautiful! I loved it all - my real present will be when I get to hold my sweet pea and she is smiling at her silly grammie! That should be this Thursday. I will be trying to get some baking and toffee done this week plus a bit back to the gym! I am in desperate need!
Hope you all had a wonderful first day of advent filled with hope.

I love you all and want to thank you for your continuing prayers and support. 

Love
Grammie Jen